RARE DISEASES

All patients are by definition fragile as they have to deal with the problems and limitations posed by their disease. Certainly rare patients acquire in this sense a dimension of more fragility because in most cases they are children and there are very few for each pathology. The immediate access of these patients to therapies, often the only treatment available, represents a right that cannot be postponed. We won’t stop until rare diseases are even rarer. #rarediseaseday2021

#WeWontRest